Accelerating Cures Through

Patient-Powered Collaboration

Our Mission

The Rare Cancer Research Foundation (RCRF) is a 501(c)3 dedicated to curing rare cancers through strategic investments and innovative collaborations that facilitate effective research and accelerate the deployment of promising therapies.

Tissue Donation

Donating tissue samples is the most effective way patients can help researchers make medical breakthroughs and advance the development of new treatments. We coordinate the safe transportation of live tissue, post-surgery, to research projects or our biobank.

Biobank

Enabling patients anywhere in the country to store their tissue samples safely and give consent for use in clinical or research studies to help advance treatment development.

Powerful Tools and Resources for Patients

COMING SOON. Building tools for all rare cancer patients to access more information about their cancer and treatment options including

  • An online portal for sharing your data and history with clinicians and researchers

  • Disease-specific resources including open clinical trials, literature searches, and specialists

  • Genomic sequencing for every Pattern.org patient to support patients in finding more targeted treatment options

Rare Cancer Data Commons

Our open-source data commons is built by the leading experts in data harmonization across cancer centers and research institutions.  It brings together data from across the field of rare cancer research and provides support in analysis of paired clinical and molecular data support.